Wow! It has been awhile since I blogged. Well Camielle is really changing. She is now walking without a walker. She communicating better. It is hard for most to understand but alot of times she gets her point across. She is in preschool. They work alot with a communication board. She loves it. She does not need to be tube feed anymore. She eat good. Her swallowing it not normal but it is good enough for her to eat orally. They didn't remove her feeding tube port because she will be requiring some facial and oral surgeries. Because she can not close her mouth she had some teeth pulled the rotted away even with brushing. My husband and I own a small restaurant and when she comes up she like to be the server. Our regulars love to see her and the progress she has made. And best of all she is potty trained!!! She is still getting her daily growth hormone shots. I can't think of anything else right now. But It is just so great watching how much she has changed in a few months.