Growth Hormone Treatment

Shely got all the things she need to start Camielle's Growth Hormone Treatment. Tomorrow they will come in and show her how to give Camielle her daily shots. I told Shely that will interfer with my having her a week at a time. She said she would show me how to give Camielle the shots. I really have to think about this one. Do I want to become the bad guy who hurts her. It comes in an type epipen type of shot. But do they hurt? Grammy doesn't like to hurt her.

Well I always wondered what will school be like for her? I wonder if the other kids will be cruel to her? I wonder if she will end up like the girl who was bullied and couldn't take it any more. These fears are real to me. Then I was on face book read in the "Many faces of Moebius Syndrome" I read Chelsea Thomas story. And I guess I have to face the fact that is will happen. She will be picked on because she is different. Oh hell I was picked on because I was fat. I guess I was hoping. But reality is it will happen and I can't stop it. I just hope since God made her this way, that he also gave her the strength to handle the peoples stares and remarks. I try not to think about these things but it always pops in my head. I walked past her walker the other day when she was here and I popped in my head that I never thought I would have a child or grand child that would need one of them. And then I thought how blessed I am to have her. She has made me realize how much every little part of life is special. Now when I look at Chloe take a step how special that small step is. When she says words how special each work is. But when I hear Camielle try to say a word or even when that Mona Lisa smile of hers comes through how special they are to me. I know she will have a rough road ahead of her. And pray that she will knock down every road block that is thrown in from of her.

Charlie, Shely and girls are up for easter. And Camielle came with her new walker and she can move in it. As I walked by it I thought how I have seen them before but never thought that it would be one of my grand children. It's amazing how little things pop in your head.

Shely said she talked to the doctor about Camielles growth hormon test and her growth hormons are none exsisting. So they are talking about doing a 6month growth hormon treatment. But the big thing will be to get the insurance company to pay for it. I would be 6 months of everyday 1 shot. And then test to see if it helped. But they think because her growth has been stunted for so long it will not help alot. But everything changes from day to day.

Well tomorrow is the Easter Day. All enjoy there day and God Bless.