Sorry I haven't written in a while. Camielle is starting to eat snacks that desolve quick in her mouth. But she has to use her hand to push the food to the back of her mouth to her little tongue and help it go down. So she is now swallowing a little. Which is great except she wants to eat all the time. When she stayed with me all she wanted was her snacks I had to bargain with her that if she left me tube feed her I would give her snacks afterwards. She has not grown much. I talked with Shely today they were on there way home from CHOP (Childrens Hospital of Philadelphia) Getting a test to check on her growth hormons. They also put her on thyroid pills for her thyroid. I get fustrated with my daughter sometimes. At times I don't think she puts her foot down when it comes to the medical profession. But last week I was proud of her stepping up. She took Camielle to the feeding clinic in Hershey and the lady there told her that Camille is under weight for her age and she should up her feeding. And Shely stepped in and said she won't. That if the women looked Camielle didn't grow from last year and that everytime you try to feed her more she just spits it up. So the lady then checked her records and they put her on a higher calorie formula.

I do worry because everytime I see my G.G. (Grammy's Girl) she seem to be loosing muscle tone. She is so light to pick up.

And I I remember She also has Russell Silver Dwartism. She is going to have to be tough and fight hard. This world is cruel.

On the bright side she finally got her walker. And now that Chloe is starting to walk maybe this will give her the desire to try harder to get around.

I really do miss her and wish I was around her more.