It's been a while

My little pony girl. She is maturing in her looks. Growing???? No so much
her 8 month old sister is bigger then her just by a little. They are looking at
a type of dawfism called Russell Silvers Syndrom. This is in addition to the
Moebius Syndrom. She has started to swallow a little so she can eat baby
snacks that dissolve quickly. But at times she will not allow you to feed her
(she is still tube feed) And she will go a day with only eating 4oz. And it
scares me. The doctors tell Shely when she is hungry she will eat. But I
have notice a weight loss in her. I can only hope and pray for her and
hope these doctors know what they are talking about.