Monday, April 20, 2009





She loves her new baby. But they are so diffrent. And in ways this Moebius Syndrom made Camielle an easy to care for baby. Where Chloe has a loud baby cry. Camielle didn't. Camielle was hooked up to a feeding machine almost continually and there were no every the hour feedings. And she was in the Hospital the first 5 weeks of her life. So it has become a challenge for Shely. And Camielle is starting to show her terrible 2 early. Shely called me the other night as my little baby doll was throwing a fit. Because Shely was eating supper and Camielle want something to eat. She didn't want the feeding tube she wanted real food and she wanted it THEN AND NOW! Shely gave her a spoon and a little baby food. No that was not what she wanted. I wonder if she notices Chloe is taking a bottle like mommy and daddy take food and she want to be like them. I always wonder how her brain works. Sometimes you look at her and you see that mask that God has given her and you for get that behind that mask is a child whose brain is taking in everything and thinking about ways to accomplish things. She is so funny at times. Well her new thing is she has to have glasses. I know that is a fight waiting to happen. At least for a while till she realizes she can see better. I worry about her when Shely goes to work. They are on a tight income now and a special babysitter for her is expensive I just hope that God bless them with some kind of help. Either that Shely won't have to go back to work or a blessing of a person who wont charge her an arm and leg to take care of the girls. I really have living away from my 3 girls. Sometime I feel that I have abandon Shely when she needed me most.

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