Wednesday, March 25, 2009



Oh how great this week was. I went and got Camielle last Thursday. She was so good. I didn't get much sleep but not because she cried, but she would wake up in during the night and talk, talk, and talk then go to sleep for a little then wake up and talk more. She was so pleasant and nobody can say she has not personality. I tried to work with her and get her to stand up but she refuses to. Bull headed little red head she is. She would make me laugh so hard sometime. But she did really get mad at me the on time and yelled at me for about 10 min. I was hooking up her feeding tube and I dropped the syringe which had her formula in it and it spilled all over her. She was not happy with me at all. Then I loaded her up and took her down to meet her mommy. And as you can see in the pic they missed each other a whole lot. But I look forward to having her again. Even though there are time I sit and look at her and wonder what is this little girl thinking. I alway realize that that mask of hers really does hide alot.

Thursday, March 12, 2009



Shely sent me some pictures of my Little G.G. She had got done feeding her and started to get her dressed and sat her up when I called her. We talked and when she turned around and look at Camielle she was sleeping. But she also woke up with her eyes pasted and a sinus infection. Camielle can not close her eyes completely when she sleeps. So in the morning you have to put drops in her eyes to clean them and lubricate them. But this morning they were really bad. She had 3 appointment on Monday. One was a orthopedic doctor who said that it looks like her thumb on her right hand is growing some bone. They didn't think it would but it is. The fingers on her left hand show some growth except for the thumb and index. He doesn't think the will grow at all.

I look at pictures of her and just think how much this Grandma wants to hold and giver her kiss. I just can't wait to see her again.

Thursday, March 5, 2009

Shely called Tuesday and said she is almost 2 cmm dilated and 50% effaced. So Camielle will be a big sister soon.
She was also watching autism x6 lastnight on TLC she was upset. She said she saw Camielle in the little boy in this actions. I told her sometimes because Camielle has not facial movement it seems like she has a blank stare. And not to jump to conclusions. But it not like I haven't had those thoughts. I know how I feel and wonder about her, I just can't imagine what Shely goes through. All I can do is pray, and rely on God and that he makes her life as normal as possible. This thing they call Moebius is so foreign to me and all the things that go with it is many. I hope to see her go to kindergarden, graduate high school, get married. I dream of these things for my little G.G.