Wednesday, February 4, 2009


Shely called me G.G. had her follow-up doctors appointment yesterday. She is now 13lbs. So she has gained a little from the time she was in Hershey Medical Center.

And Shely had her doctors appointment. You see G.G. will soon be a big sister. Shely has been watched carefully and had many sonograms during this pregnancy. Just to make sure everything is ok. She had a picture perfect pregnancy with Camielle. I still remember the day she was born. When she arrived you could tell her cry was not like any babies I ever heard and she had no facial expression. Her hand was deformed and the other hand only had one joint on each finger and her index finger on that hand didn't bend at all.


When we were told she had Moebius Syndrom my first thought was how will people treat her. Most people will come up and try to get her to smile. Which is normal, when you explain to them she doesn't smile you get mixed reactions. One time Shely and I went for pizza we were sitting by a couple and a gentlemen was sitting behind Shely. Camielle was looking at the couple and the lady said she look like a baby doll but she stares alot. The gentlemen said he was just waiting for her to blink. When we said she didn't blink the couple got up and left and the gentlemen never looked our way again. Oh well I guess the unknown bothers them.


And I wonder a lot how kids will treat her in school when she gets older. I wonder if she will ever walk. Oh get me started on that. Her physical therapist is trying to get a special walk to us to try and get her to us her legs. They have on used for all they therapist. That just not right. I would like to buy one and when Camielle is done with it I am going to donate it. But when I looked them up on line they were over $600. Ouch.


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