Thursday, February 5, 2009



I could write about this little doll everyday. When I get my news letter from the Moebius syndrome Foundation I am sometime excited to see teens and adults who lead a normal life. But there are times that you see a child around 3yrs or 6yrs old that had died. And it scares me. When I look in to that blank face and I wonder what she is thinking. I will tell you she is a red head with that red head temper. If she is mad at you, you don't have to see any facial movement you just know looking in her eyes. She had to go into Hershey Medical Center yesterday for blood work. We thought that the diahreaa was caused by her formula not it wasn't and it is back so they are checking for bacteria in her blood to see it that might be causing is. She has alot of leakage around her feeding sight. And we wonder if that might be a problem. If there is an infection you would think that might be part of the problem. But the doctors act as though our concern are nothing. Oh well. I just know that the good Lord is watching over my G.G. And that she will grow up to be strong in many ways. www.moebiussyndrome.com

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